The Grace Rose Foundation is a 501-C-3 non profit organization that supports Cystic Fibrosis research and mental wellness within the disease. We want to provide all people with CF the opportunity to lead full, productive lives by funding research and programs for mental health, Our goal is to make people aware of the anxiety and depression that comes along with a life threatening disease and "invisible Illness"
We are working on meditation, therapy and creative outlet opportunities for people with Cystic Fibrosis and children in the hospital. Currently Grace-Rose is working on an app to support this program for children in the hospital.
Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe. There is currently no cure. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas, sinuses and other vital organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients. In the sinuses the mucus blocks airways and causes chronic fatigue, headaches, infections etc. People with CF are also at a higher risk of developing CF-related diabetes from pancreatic blockages as well as liver scarring and kidney transplants.
Your support and contributions will enable us to support Cystic Fibrosis research and work on Mental Wellness programs for children in hospitals. Grace-Rose is currently working on an app to help children with chronic or life-threatening conditions deal with the anxiety and depression this presents.
Your generous donation will help fund our mission.
Learn more about our upcoming events, fundraisers, and more!